hi friends!

happy march! we are so happy to say that lewis has been doing really well this past month. thank you for your prayers! we are SO grateful for them & the ways we have been seeing jesus move in our lives.

the laser treatment procedure on his wrist and arm scars went really well last month. lewis didn’t have any problems at all with the anesthesia (wohoo!). we are not sure how effective it was & are still trying to figure out if we need more treatments in the future.

lewis was able to receive an infusion last month on 2/2 & this past week on 3/2. infusions are scheduled for every two weeks, but we had to delay some due to low white blood cell count numbers & a cold we all caught. he is on the lowest dose of medication now, so we hope that adjustment will allow him to get his infusions every two weeks.

the full MRI lewis had last month on 2/10 was pretty rough. lewis had a hard time coming out of anesthesia again. that is always hard to watch and usually affects his mood for the next day or so. we were able to get his botox injection in his eyes done while he was sedated for the MRI (yes, that ended up working out!) and the botox has helped straighten out his eyes so they aren’t crossed anymore. it’s amazing! the straightening of his eyes will most likely be a temporary thing, so we will see how long it lasts & if/when he needs another botox injection. but for now, it’s really made a huge difference in the alignment of his eyes, and we’re praying that it ends up being a permanent fix.

we saw his neuro-opthalmologist last week & she was amazed at how much lewis’ peripheral vision has improved since his last visit around christmas. sooo encouraging! especially when we know peripheral vision will be the biggest challenge due to the location of his tumor.

we also touched base with our neurosurgeon & that was also encouraging. seems like cyst is relatively stable, around 50% of the size it was on thanksgiving pre-surgery. & we still have not had to drain it! the infusions seem to be working & are keeping the cyst from growing. yes!!! we will continue to watch the craniopharyngioma & see what it does, but right now, things feel stable, and that’s been such a relief.

we are so encouraged by your prayers! i am so confident that this good news is the result of god’s goodness being poured out on us & the prayers of many. thank you for lifting our little boy up! we do not understand pray or know how it works, but we are leaning into it & the goodness of god.

20 So they brought him. When the spirit saw Jesus, it immediately threw the boy into a convulsion. He fell to the ground and rolled around, foaming at the mouth.
21 Jesus asked the boy’s father, “How long has he been like this?”
“From childhood,” he answered. 22 “It has often thrown him into fire or water to kill him. But if you can do anything, take pity on us and help us.”
23 “‘If you can’?” said Jesus. “Everything is possible for one who believes.”
24 Immediately the boy’s father exclaimed, “I do believe; help me overcome my unbelief!”

Mark 9:20-24 NIV

our next quick MRI is march 23. our next full MRI is may 10. in the meantime, we would love your prayers for all the things but specifically:

cyst/tumor stays stable in size
vision continues to improve & eyes stay straightened
regular infusion appointments
good anesthesia experience with next full MRI

lewis is doing so well otherwise! he just started standing on his own these past few days. he will be walking any day now! he is a big talker & he loves saying thank you, window, keys, & milk. he is such a fun guy & we love just hanging out with him and seeing what he’ll do next.

thank you for your prayers & please keep them coming!! we are eager for our boy to be healed.