hi everyone -

we got a quick brain MRI done this past wednesday & it looks like the cyst has grown a lot in size. :( big bummer.

we are going to go into the clinic tomorrow to try to get it drained using the catheter. we have not used the catheter since it was place, the day before thanksgiving. after it was placed, they used the catheter to aspirate/drain the cyst. it worked great then! since it has been a few months since then, we are hoping that it still works! there is a little skepticism that it might not work for various reason, like the tip of the catheter being misplaced or the catheter itself getting clogged.

PLEASE be praying that the catheter works wonderfully tomorrow & that it can aspirate the cyst! we are hoping to get a few CCs out of the cyst & buy us more time to continue treatment with the infusions. it should be a quick + easy procedure if everything goes as planned.

we are going in for our appointment at 1:30pm tomorrow, friday 3/24. please be lifting us all up! please pray that it works great & that our anxieties would be calmed. rachel will have to take lewis in by herself.

these past few months where the cyst has been stable have been a real treat for us. we only go to the hospital like one-two times a week these days & Lewis’ vision has improved so much! feels like a pretty normal life for us. but bad news like this immediately brings a lot of fear & sadness back into our lives.

if the catheter doesn’t work, our options become very limited again & will most likely force us to go with a more invasive surgery. please be praying for healing for our little lewis!! his eye has also started to turn inward during the past week, which seems like a symptom of the cyst getting larger.

thank you for praying + lifting us up! we will update you if it works & probably not update it doesn’t bc we will be so sad. :) thanks for praying for little lewis! <3