wow! we are so happy to be back at home — and lewis is especially happy!! he has been busy doing all his favorite things: crawling around the house like nobody’s business, eating so many solid foods, and dancing along to music.

we got back home on sunday afternoon. great flight home! lewis slept the whole way in my lap & woke up ten minutes before we landed. our little perfect boy! we were so blessed to have seen family & friends who took GREAT care of us while we were in SF, we feel so lucky & grateful for how they supported us.

it seems like lewis is dealing with the opposite of diabetes insipidus, where he isn’t peeing enough. we are going to get his levels checked tomorrow, but since he still has some lingering cold symptoms, we have to get another negative covid test (he has had 3 in the past 11 days) so we can be allowed in the hospital. covid has been making everything so much harder.

other than that, lewis is in good shape & in good spirits. he is pretty much sleeping through the night again & is his normal, happy self. we are still waiting for his eye to get better. the doctor said that it will take up to 4 weeks for us to know if the procedure relieved any optic pressure for lewis. in the meantime, we are patching his right eye for at least an hour everyday so he can maintain his vision in that eye.

things have kind of turned into a waiting game, which is what i think a lot of this journey will feel like. we are having a hard time celebrating us completing his first procedure or the first step, because it feels like we are waiting for the other shoe to fall. there are so many things we can only hope for, but we are just waiting until symptoms get bad enough that we have to do something - like if his optic nerve still doesn’t improve after the procedure or if the cyst starts regrowing. i know we should be celebrating making that first step towards healing or at least deciding on a care plan & team — we are thankful for are those things, but it doesn’t feel like we can step back and take a breath yet. but we will, eventually.

if you could pray that we could feel god’s hope in the next bit, we would be very thankful. i think that we both felt god’s peace during these past few weeks, we are very grateful for that. we are so thankful for the community, all of you, that have risen up around us to carry us through this in the past week - so very thankful. i could use a bit more of god’s hope to hang on to.

our prayer request is still for complete healing of lewis’ body - the healing of the new incision, his diabetes insipidus to fully resolve, the tumor & cyst to shrink, for pituitary restoration, for his optic nerve to be relieved & vision to be corrected, & everything else.

thank you so much for praying that with us, and for all the gifts, encouragements, cards, generosity, and love!