recovery

hi everyone!

thank you all of your prayers, texts, & messages that you sent us these past few days - they each mean so much to us & we are so thankful!! we feel so supported & not alone through all of this.

yesterday had some complications, but overall went well. the cyst did not pop on the first go around, so they were almost done with the procedure when they realized that - but they were able to go back in while lewis was still sedated & puncture the cyst wall with something more pointed. that was very stressful for us, faced with the possibility that the goal for this procedure couldn’t be obtained… VERY stressful & considering our options and what that would mean going forward. but god really showed up in that final hour and helped the procedure go successfully & overall smooth.

we are currently in the ICU for lewis’ recovery. there was a small chance of him developing diabetes insipidus, a hormonal condition that can be triggered where it is difficult to maintain hydration levels (ie. too much/too little peeing & being thirsty). unfortunately, lewis has developed this. please be praying that is just temporary & will resolve itself within the next few hours. we will stay longer in the ICU so they can closely monitor these symptoms.

he had some sudden swelling after we go to our room yesterday, which was scary, but it has gone down & seems to be doing better.

recovery is HARD. it is hard to see our little boy being so tough. he isn’t getting much sleep as they have to check his vitals every few hours (he is currently napping now - yay!). we brought a LOT of toys from home & it has made his room a lot brighter, along with a balloon & cards from friends. they also brought out a play mat for lewis to sit on, we just have to manage all the cords that he is connected to while he is moving around.

thank you for supporting us & please continue to pray for our sweet little boy as he recovers. for swelling to stay down, his diabetes insipidus to resolve, his optic nerve to relieve itself, & for great healing for everything else. we love you all! xo

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