hi everyone, thank you to everyone who has reached out to us and kept us in your prayers. it means so much to us knowing so many of you are with us through this.

this past week has been a hard one. the second attempted to drain of the catheter did not work again, meaning it's likely not functioning properly. we have a CT scan this wednesday to get a better view of where the catheter is, but without it being able to drain, we have no guaranteed way of keeping the growth of the cyst under control.

so this week, we have consultations scheduled with many different doctors. some will have different approaches and recommended treatments, and it will be a lot to take in. as thankful as we are that we've made it even this far without needing an invasive surgery, it feels so scary being back in this position again, just as we were last summer. none of the options are without serious risks, lifelong side effects, and months of treatment/recovery. regardless of which we choose, lewis will likely be among the youngest patients treated with this tumor.

we are asking for prayer for wisdom and clear guidance on our next move. this week we need clear and open minds as we ask questions of doctors and consider all possible treatment options and multiple doctors. our hope is that God will lead us toward the best doctor and best possible treatment plan for lewis.

it’s been difficult to remain hopeful this week, but there are stories out there of positive treatments that have given us hope, like ari’s: https://www.stanfordchildrens.org/en/service/neurosurgery/ari-ellman - this surgery is one of the options we’re considering right now, and ari was in a situation very similar to lewis just a few years ago.

thank you all so much. if you are joining us in praying for lewis this week or thinking of us, we always appreciate comments here or texts from you. it’s so encouraging to hear from people right now!