hi everyone!!

thank you for praying for us! after our first MRI since the last surgery, we finally have some encouraging news to share: we saw the cyst & it was almost unrecognizable! :O wow. it is much smaller than it was before thanks to surgery (and is far smaller than the result of even the first surgery). it hasn’t grown much in those first two weeks post-op either. YAY! praise the lord.

as a result, lewis’ eyes have improved a lot too. his dominant eye switches between his right & left frequently enough that we don’t have to patch, and his eye shakiness is almost entirely gone. no one knew how much of his vision problems would be recoverable even with surgery, so it’s so encouraging to see how much vision he’s been able to gain back.

all this has been such a relief to us, whoohee! we are thankful that is has stabilized for even this short amount of time, we feel like we can finally take a breath - and it has helped us lean into this holiday season even more.

we still continue to ask for our christmas miracle! for full healing & complete shrinkage / disappearance of the cyst/tumor! we have a rapid MRI tomorrow morning & then lewis’ 3rd infusion on wednesday. (P.S. i learned that his medication should be called infusions, not chemo - oops!)

please be praying for us on tuesday morning for the rapid MR & wednesday morning for the infusion session. we are a little worried about lewis’ behavioral reactions after hospital visits. it really upsets him to lean backwards or not be in control of his body especially after these visits. his behavior was much more affected after our last infusion visit, even more than our last hospital stay! so please be praying that we can figure out a good way to communicate to him & that it wouldn’t be causing any behavioral/emotional damage. please reach out to me if you have any ideas of what to do! i think i am going to reach out to an occupational therapist & early intervention, and i should probably try to work in some baby massage.

thank you for supporting us through this wild ride. we are hoping that you are all having a wonderful time enjoying the holiday with family & friends! merry christmas!!!